Friday, March 20, 2009

Demented bird

We have a demented Cardinal that keeps flying into our living room window. He has been doing this for the past three days now. Now, I understand that it is very early spring and nesting season is about to begin but this is bloody silly. What the hell is it trying to do? Short of opening the door and inviting him in I'm not sure what else to do. What a blithering idiot. Very pretty but really dumb.

Carpe Diem.

So I lied !!!

I did just say that I wouldn't solicit donations for our Zimbabwe project but I guess I lied. I have heard from so many of you who - like me - have been incredibly moved reading Dennis' letters. It really makes me frustrated and sad that treatments for simple diseases like scabies - which cause so much suffering - are so out of reach for most people there. I am so grateful to all of you who keep sending contributions to help feed and assist these kids and families. The need is so overwhelming and I know we can't help everyone, but I am filled with hope about what we are able to achieve with Dennis' help. We are feeding people who would otherwise be starving and we ARE making a difference.

Any size donation would make a difference. If you need my mailing address or any information on how to donate please email me privately at:


I am also trying to look into the possibility of obtaining medicines from different companies or corporations. If you have any ideas please let me know. The most basic of medicines saves lives over there.

I understand fully that right now globally, there is a huge demand for philanthropic causes. Right here in the USA people go to bed hungry or sleep in their cars. While I have seen the generosity of the American people here at home there is no one to help the people we are trying to help.

A heartfelt thank you.

Carpe Diem.

Thursday, March 19, 2009

Where we (I) stand

In case anyone was wondering about my attire in the past few current pictures, It's quite simple. No I haven't joined a cult or commune. Just one word - pajamas.

We have our medical game plan for the next few weeks. This past Wednesday I did not need my second Neupogen shot. Next Monday March 23rd I will have my blood work and then on April 1st I will have my PET/CT scan. That's it for now. Almost a reprieve of sorts.

So in light of this I am going to spend a few days with my Mom in Boca towards the end of March. I look forward to seeing and spending time with her, the change of scenery and maybe some nice weather! I may even toss in some fishing for good measure.
Now with regards to Dennis,his fine work in Zimbabwe and his amazing letter updates. We are still continuing to work with and assist Dennis with donations. As you can see from the above currency from Zim it is completely ridiculous. Pretty but worthless. Foreign currency is the only currency used for daily trade. I am not going to keep appealing for help as I think the letters are self explanatory and self appealing. Whatever donations we get are going straight to him and are being used 100% for food medicine and whatever else is needed. The difficult thing is when word gets out of the assistance he is providing he is sometimes overwhelmed and has to make some really tough decisions. For me personally, it seems so easy to make the decision to send a donation and not have to decide who gets what over there!!!

Whoever destroys a soul, it is considered as if he destroyed an entire world. And whoever saves a life, it is considered as if he saved an entire world.
- Jerusalem Talmud, Sanhedrin 4:8 (37a)

Carpe Diem.

Letters from Zimbabwe

From Dennis:

Since Brian’s funeral the days and weeks have flown by. Tinashe Basa, the young man who works with me, (and who dug Brian’s grave) and I visited Brian’s family to film the local inyanga (traditional healer) for the documentary Elli is working on. When we arrived Mr. Sibanda, Brian’s grandfather, was on the other side of the ridge attending the funeral of a 25-year-old woman who died of HIV related causes. Children were sent to get him. In the meantime I saw Brian’s grandmother (gogo) who complained of soaking night sweats. The local clinic gave her aspirin. (I’m thinking HIV) I told her to wait to see if they passed in a couple of days and if they didn’t to come back to Bulawayo and I’d take her to the doctor.

She returned a couple days later. In the meantime I visited Brian’s aunt, Florence, who is HIV positive and lives next door to Brian’s home to inquire about Director, her 14-year-old boy who is involved in my doll project. She greeted me at the door with immensely swollen neck glands and a half dollar sized oozing cyst in the middle of her forehead. On Monday I took them both to Sashka, the Serbian doctor. The gogo had blood pressure of 185 over 120 and anemia. Florence got antibiotics and anti nausea prescriptions. She is fighting HIV with the local ARV regimen has been loosing weight consistently over the last few months. There are no second tier ARV drugs here. Her prognosis is grim. Gogo got blood pressure meds and anti anemia meds. Sashka also prescribed her one egg a day for anemia so I bought a tray (2 ½ dozen) for her. Got Florence a tray as well.

A few days later I checked on gogo and Florence. Both are doing better. Then I stopped by Prosper’s house. He’s a terrific 16-year-old boy who helps a great deal with the younger kids and keeps records for Sipho and, since Sipho has no phone, is my conduit to the group. He said his 38-year-old mother was sick. Said the blood vessels in her eyes were pulling them shut. I went into his house, greeted his grandparents and into the back bedroom. His mom was sitting there with a hat covering her eyes. They were swollen shut. She had just been tested for HIV and came out positive and began ARV’s a month ago. Her left leg was swollen and around her ankle was a deep wound of the sort Brian had on his head. The area around the wound was charcoal black. Several circular scars the size of quarters were on her calf. She was frightened to death. I checked out her meds and told her I’d take her to the doctor’s Friday along with Florence.
On the way home I saw Gogo Dlamini, who cares for 7 orphans - all grandchildren - walking toward the police station. The youngest boy, Mthobisi, (10 year’s old) was arrested for stealing a remote clicker. He’s floundering since his three cousins aged 14, 15, and 16 who gogo also cared for decided to steal a computer and hitch a ride to South Africa illegally. They took along Director, whose caregiver is Florence with the swollen glands. Director managed to find his sister in South Africa. It’ll cost 300 Rands to get him back. He’s a good kid, the type that will learn a lesson and he has the money from his doll sales. He should return next week. The other three disappeared to god knows where in South Africa. Their 70-year-old grandmother is worn out, spent but there are the three girls age 8 to 16 to care for. So she trudges on.

I have a mini epidemic of scabies going on which I am trying to get under control. When the kids together they all sit shoulder-to-shoulder making their dolls and transmitting scabies. Charles Zulu and his sister came two weeks ago covered with crusty itchy bumps and said their mother had it also. Got them the treatment and a week later their mother complained it hadn’t gone away so bought some more medicine. When I went to their home I discovered that nine people lived in their 2-room house and 8 had scabies. So I got enough medicine for everyone.

Last week three more kids/ three different families showed up with it. Expect it to be an ongoing problem for the next months or so as it takes 6 weeks from contact to show up. Each small jar of medicine – enough for one person is about $5 US. Feel like I have to buy it by the gallon!

One of the dangers in this work is that whatever I do word gets around. So when I provide treatment for scabies people tend to come out of the woodwork hoping for help with myriad medical problems because they cannot afford treatment. Then it’s a Solomon’s choice. Some you assist some you can’t. Some live some die. One falls asleep wondering if you could have done more.
The kids are now in school, though it’s unlikely to continue for long. Teachers are likely to strike soon. The annual inflation rate had passed, a conservative, five sextillion, or 5,000,000,000,000,000,000,000 percent. They gave the teachers $100 US last month but nothing more since. There are billion and trillion dollar notes on the ground in trash heaps as they are worthless. All goods are now sold in US or Rand.

Saturday is food delivery day. After they bring home the food they return and we play games, talk and laugh. Kids have a wonderful in the moment existence that is a cherished relief. This week they’ll each get:
10 exercise books, 2 pens, and 4 pencils
10 kg maize meal
2 litres cooking oil
Vegetables including butternut, tomatoes and cabbage (prices have tripled so sticking with the favorites)
2 kg sugar
2 kg of Beef
They continue to make dolls and are getting more and more innovative and creative. They really enjoy it. Collen, 16 years old, has become a real artist with his dolls. They are incredible.

I am due back to the states around the 12 May. So I am working hard to make sure the work continues while I’m away and putting things and people in place to that end.
My best to you all.
Dennis.

Carpe Diem.

Tuesday, March 17, 2009

Making a difference

There is a wonderful news segment that NBC nightly news with Brian Williams has been airing for the past week or so. The basic gist of the segments are what amazingly generous deeds many individuals and businesses are doing during these tough times. It is incredibly moving and inspiring.

If my blog, in any way, inspires or encourages anyone to trust and listen to their bodies and get the medical help they need then I am truly happy. If my trials, travails and tribulations inspire any of you to do whatever good you can do in this short life time, then again, I and the beneficiaries are eternally grateful.

"We make a living by what we get, we make a life by what we give".
Sir Winston Leonard Spencer Churchill (1874-1965).

Carpe Diem.

What's up

Well so far I'm feeling ok. Not great! Mostly tired though. I went in to the infusion center today to get my first of two Neupogen shots for the white blood count elevation. Even though my count was good yesterday they want to keep it high. I will find out if I can weasel out of the second shot. What a wussy!

I will try and keep up with the blog and post a few recent pictures over the next few days. My weight is somewhat stable but I am noticing the hair getting a little greyer. The least of my worries.

Carpe Diem.

Monday, March 16, 2009

Chemo 4 (Round 4)

Hey it's chemo day. Whoop De Doo. You know, I make all these strange comments and complaints about chemo day but the reality is I can only hope what I am enduring will pay off.

We will be getting our treatment records from Sinai Hospital today as we are planning to go for another consult with a different group of doctors and a different hospital. I will explain more at a later date about what lead up to all of this. Suffice to say, that when Dr. Erlich establishes his practice he will be my Primary Oncologist. Lets hope it's soon.

Well we got everything accomplished. I got the full poisoning so it took about 5 to 6 hours. We elected to include the Oxiliplatin ( the sensitive to cold chemo). I thought that on the off chance it may help then why not. This was the last chemo in this series and now I will get PET/CT scan on April 1st. Tomorrow and Wednesday I will be getting my Neupogen shots. My pre chemo blood work looked fine but they need to keep the white blood counts elevated with these shots. In the meantime, Diana wandered around the hospital getting all my records and then took them over to our consult Doctors office. We keep our copy for our records and it made for some interesting reading! For the most part it was nothing we did not already know. It was just weird to read some really technical operative stuff.

I was a little tired in the evening but generally felt ok. Passed the time watching House and 24 on TV.

Carpe Diem.

Sunday, March 15, 2009

Weekend update

Rob is home for her spring break. Friday afternoon I picked her and a couple of her school friends up and brought them home. The friends live quite close to us so it was good to be able to car pool.

Saturday morning we watched Man U play Liverpool and all I can say is...............ssssshhhhhiiiiittttt!!! We lost 4-1. I had to take one of my chemo anti-nausea pills to get by. How utterly embarrassing. Did I mention that I hate Liverpool. We drowned all this sorrow out with a nice family dinner at Tonino's (Italian).

Sunday was catch up on a few chores day. Rob's passport renewal pictures. A visit to the AT&T store to check out new wireless service for the Suskin Family. We are with Sprint now and need to make a change.

I have been feeling ok today and this weekend. Better than a while ago. Just as soon as this happens then I have tomorrow to look forward to. Chemo day!!!

Carpe Diem.