Saturday Man U football game. Monday chemo. Whoopee. Thursday off to Africa. Yeehaa.
Carpe Diem.
Friday, January 21, 2011
My appointment with Dr. Sidransky
I had a good and informative meeting with Dr. Sidransky today. We discussed a number of things today including a complete gene sequencing test for me and whether or not I could take a break from the chemo treatments.
Probably in the next few months I will go ahead with the gene sequencing test. It still is very expensive and in all honesty the longer I wait the cheaper it gets. Dr. Sidransky is in no hurry to get these tests done as medically, things are stable with me right now. Once the tests are done then they pair it up with the molecular study (that I had done previously) and come up with a medication that is ideal for me. That's how it works in the perfect world ! By the way, I was told that there are very few people globally who have had a complete gene sequencing. BFD.
It's a good time to be alive right now as it is truly mind numbing what is being discovered every day that could help eradicate this awful disease.
Dr. Sidransky also advised against stopping or taking a break from my chemo regimen. With regards the Avastin, once you go off it there is a chance of the cancer "blossoming". In essence, growing wildly. That's not what we want. It is the current treatments I am receiving combined with a slow growing cancer that is keeping bad things at bay. I'm tolerating these drugs quite well right now and they are still working for me. Eventually their effectiveness will diminish and we will have to try something else. I'm the eternal optimist so in the mean time, travel, travel, travel.
Oh, the best part of the appointment was that they validated my parking.
Carpe Diem.
Probably in the next few months I will go ahead with the gene sequencing test. It still is very expensive and in all honesty the longer I wait the cheaper it gets. Dr. Sidransky is in no hurry to get these tests done as medically, things are stable with me right now. Once the tests are done then they pair it up with the molecular study (that I had done previously) and come up with a medication that is ideal for me. That's how it works in the perfect world ! By the way, I was told that there are very few people globally who have had a complete gene sequencing. BFD.
It's a good time to be alive right now as it is truly mind numbing what is being discovered every day that could help eradicate this awful disease.
Dr. Sidransky also advised against stopping or taking a break from my chemo regimen. With regards the Avastin, once you go off it there is a chance of the cancer "blossoming". In essence, growing wildly. That's not what we want. It is the current treatments I am receiving combined with a slow growing cancer that is keeping bad things at bay. I'm tolerating these drugs quite well right now and they are still working for me. Eventually their effectiveness will diminish and we will have to try something else. I'm the eternal optimist so in the mean time, travel, travel, travel.
Oh, the best part of the appointment was that they validated my parking.
Carpe Diem.
Thank you South African Airways
Whenever I travel back to Zim I try and take as much medical supplies and assorted other ZimKids stuff as I can. I usually end up with 3 suitcases of which only ¾ of 1 case is my stuff. What has happened in the past is that I end up paying $200 for the 3rd suitcase.
I wrote a brief email to an individual at the South African Airways office in Ft. Lauderdale and she was able to get the extra suitcase charge waived for this trip. Thank you Heather and thank you South African Airways.
Carpe Diem.
I wrote a brief email to an individual at the South African Airways office in Ft. Lauderdale and she was able to get the extra suitcase charge waived for this trip. Thank you Heather and thank you South African Airways.
Carpe Diem.
Monday, January 17, 2011
One of my favorite quotes
"And now we are Free. I will see you again... but not yet... Not yet!"
Carpe Diem.
Carpe Diem.
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